- Paper about Rare Diseases
- The european commission aproves Merck Serono’s Kuvan®
- The La Fe Hospital from Valencia performs the first hepatic cellular transplant in Spain
- Political Parties request to the Department of Health a reference unit for Rare Diseases
- The Parliament requests to Osakidetza to create a unit for Rare diseases
- Pablo Sanjurjo: ‘Our newborn testings are those of twenty years ago’
- Experts request testing for early diagnosis of Metabolic Rare Diseases
- Spain will develop a national strategy for Rare Diseases. (Orphan publisher)
- Press Release: Patients with congenit metabolic disorders request a reference unit in Cruces
- Cruces aspires to become a reference center for metabolic disorders.
- ”We have been good for the last twenty years”
- We will have to alarm some mothers”
- Necessity evaluation and revision of services for people with hereditary metabolic diseases in the UK
- Letter to the director
