What is the cost of a child with a rare disease?

Mr. Caldera:

We think it is great that the Government encourages birth but before we would also like to be ask: How many children born with rare diseases that could be prevented, by diagnosing in time, and installing the necessary means as a Tandem of masses in the different autonomous communities? In this way we avoid irreparable damage to vital organs and sometimes even death in these children. We would also save families from this economic burden.

Encourage birth, but also to Mr. Caldera, lets first avoid irreparable damages to the newborns and provide them a quality of life and a bhright future.

Euskadiko PKU-OTM Elkartea

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