:: REFERENCE UNIT CONGENITAL METABOLIC DISEASES Dr. Sanjurjo

Dr. Sanjurjo began publicizing the talk would be his last speech as a doctor, since the next July retire and thus ceases to act as such . After a brilliant career in the area of Pediatrics and specifically in the study and research of Inherited Metabolic Diseases as is recognized for his many publications and several awards , including the Queen Sofia Prize .

He did a little tour of the struggle we have kept the families of those affected with metabolic errors along with doctors over more than 20 years in search of a reference unit for these diseases at the Hospital de Cruces, after many fights in the Basque Parliament and newspaper articles, it seems that the Ministry of Health from Europe have pushed for such Units ordered for 8 regions are created.

Units require reference requirements that require to create them , a number of all patients annually . All patients with a census of their diseases and their medical records, pharmacy units in which there are drugs to treat these diseases , intensive care units prepared , educational requirements, programs of study. It also requires that there is an expanded neonatal analytical method Clinical Unit MS / MS , clinical unit , centralized monitoring and multidisciplinary trained at least 80,000-100,000 Maximum 15.000y Newborn Newborn

Having established all this documentation , an audit is received from the Ministry and given the nod goes to a committee that is what will tell if it is feasible Reference Unit .

TRANSFER OF ADULT : ADVANTAGES AND DISADVANTAGES

ADVANTAGES

      The patient maintains the same monitoring equipment .
      The quality of care will be higher .
      Patients were not dispersed and may be provided comprehensive care.
      The team will increasingly revert experience in healthcare quality .

DISADVANTAGES

      We do not have legal cover from 14.
      The expert adult inhibit the problem.
      No consultations have adapted to adults.
      Dispersion patients : hepatology , neurology , internal medicine, nephrology .
      Not tested Reference Unit .

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