Category Archives: Agenda

Saturday May 8, 2015 the first workshop was held junior metabolic kitchen. Our little prepared two dishes: potato gnocchi with tomato sauce and pancakes with strawberry syrup. The day was very nice and the kids enjoyed themselves, which caps id preparing for the next workshop. Photo album

Urgencias metabólicas PADRESiv> Asistimos unas 27 personas entre las cuales estaban presentes Josu comercial de los laboratorios SHS. La charla comenzó a las 12:30 horas en el cual el Dr. de Las Heras explico detalladamente que pasos seguir ante una urgencia metabólica, tanto los padres en casa como los facultativos en el hospital. La exposición fue muy amena e interesante. Os adjuntamos el pdf explicativo. Gracias a todos por vuestra asistencia.

[good-old-gallery id=”3607″] Dr. Sanjurjo began publicizing the talk would be his last speech as a doctor, since the next July retire and thus ceases to act as such . After a brilliant career in the area of Pediatrics and specifically in the study and research of Inherited Metabolic Diseases as is recognized for his many publications and several awards , including the Queen Sofia Prize . He did a little tour of the struggle we have kept the families of those affected with metabolic errors along with doctors over more than 20 years in search of a reference unit for these diseases at the Hospital de Cruces, after many fights in the Basque Parliament and newspaper articles, it seems that the Ministry of Health from Europe have pushed for such Units ordered for 8 regions are created. Units require reference requirements that require to create them , a number of…

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Sorry, this entry is only available in European Spanish.

[good-old-gallery id=”3591″] ROASTED TOMATOES WITH CRUNCHY PETALOS Portion 5 diners in the case of adults and 10 servings if they were children   10 ( 1400g. ) Medium tomatoes 350 g . Fresh mushrooms . 1 ( 250g. ) Onion 1 tablespoon chopped fresh parsley 4 tablespoons of olive oil 1 pinch of crushed garlic 1 pinch of ground white pepper Salt to taste 100 g . Special grated cheese. A spoonful of special breadcrumbs. PETALS FOR CRUNCHY : Special flour 1 cup Olive oil for frying necessary .   • Wash the tomatoes well , dry them and cut a thin slice at the end where the stem is located. While removing caps scrape the pulp and leaving only the skin to crisp petals and reserve . • Empty interior of the tomatoes and place them and the pan placed in the source that we will put in the…

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[good-old-gallery id=”3586″] 4 potatoes (350 g. Approx.) 50 g. Oscar Mayer bacon soft 30 g. grated cheese (German) Salt, pepper and oregano. • Heat the oven to 180 º • Wash the potatoes well and dry. • Wrap one by one in foil. • Roast in the center tray for approx. 45 minutes. • Prick with a needle to ensure they are ready. • Let cool until it is warm, cut in half. • We emptied the potatoes and reserve the meat. • In a skillet sauté the bacon fine previously cortadito and mix with beef and potatoes that have booked and half the grated cheese, add salt, pepper and oregano. • Fill each potato with the mixture, cover with the remaining cheese and we gratinamos in the oven a few minutes.

[good-old-gallery id=”3562″] Last Sunday we had our first cooking workshop 2014. We had a great time and learned to cook two new recipes. Thank you very much everyone for coming.

[good-old-gallery id=”3528″] On 14 September we had a new cooking workshop in the hostel of La Arboleda, once again our beloved cooks, Vicky and Mary, we did see how easy it can be to develop low protein recipes. This time not prepared tigers, tortilla cauliflower and roly-poly. All great, they gave a good account of our kids. Once again many thanks to all especially the cooks. BRAZO DE GITANO Ingredients GR PT CAKE 1 egg 49 May. 98     * Yolk 14 2.31     * Clara 35 3.67 Sugar 100 — Flour 100 0.31 Handle 100 0.50 1 about royal yeast 16 0.60 Butter 20 — TOTAL 7.39 PASTRY CREAM Flanín (Potax) 25 0.07 Cornstarch 25 0.20 50 — Sugar Rind of 1 lemon —– Stick cinnamon 1 —– Milk 250 0.40 TOTAL 0.67 TOTAL (Cream + Cake) 8.06 CAKE • Put baking paper on a plate and spread with…

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[good-old-gallery id=”3517″] We attended some 27 people among which were attended by Dr. Javier de las Heras and commercial Josu SHS laboratories. The talk began at 12 hours which Dr. Aldamiz made ??a comparison of what is a blockage in the acidemias. He did it with a trailer on the highway you have to find that hole you left when you cross or scissors to make passing the other cars. In acidemias are meeting new complications that were not described as patients were only pediatric age, as these patients get older is when they get to know these new complications. Clinically are: metabolic diseases intermediate metabolic pathways closely related to each nonspecific symptoms for each disease Symptoms of disease groups clinical biochemical screening criteria. Intoxication is an accumulation of different compounds intracellular metabolic block next to it creates: aminoacidopathies organic acidurias deficiencies of the urea cycle energy deficit deficiency in…

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[good-old-gallery id=”3504″] On Saturday April 27 Dr. Aldamiz we gave a talk on “Self Management of adult fenilcetonúrico” in the room Ganekogorta Cruces University Hospital. The talk began about 11 h 45 min and 30 families attended the various pathologies. The talk was nice, pleasant and familiar. We made a small introduction telling a little history of phenylketonuria. Phenylketonuria or PKU its acronym in English, was identified in 1934 by Folling, which saw high levels of Phe cause of mental retardation. In 1949 Bickel began to treat these patients successfully with a low protein diet. In 1963 Guthrie measure development technique impregnated cardboard Phe levels. The consequences of increased levels cause white matter damage, oxidative damage, impaired brain LNAA incorporation and other unknown effects, the prevalence is 1:20,000. The diet is low in protein-free amino acids Phe, Tyr supplemented with vitamins, trace elements, essential fatty acids and low protein foods.…

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